Alberta Bone & Joint Health Registry

ABJHI is developing an Alberta Bone and Joint Health Registry (‘ABJHR’).

The ABJHR will be a technical platform enabling an integrated bone and joint health database that will channel advanced research, knowledge and innovations to improve Albertans’ quality of life, health and function. This is a view and understanding of bone and joint health that no system in the world currently has.

The ABJHR will be developed in modules, starting with shoulder care. ABJHI plans to have the full, comprehensive ABJHR launched by spring 2025.

ABJHI’s Alberta Bone and Joint Health Registry will be:

  • Comprehensive

    Encompassing the public sector, private sector and voluntary participants

  • Longitudinal

    Long-term monitoring of entire musculoskeletal disease and health condition

  • Structured

    Inter-connected modular data on the entire patient experience

  • Secure

    Protected and anonymized in compliance with federal and provincial data privacy regulations

  • Accessible

    Anonymized data, findings and reports for researchers, industry, patients, clinicians, planners

The ABJHR will be transparent in processes for data acquisition, security, privacy and governance.

An expression of interest was completed in January 2019 which led to appointment of two Clinical Champions to provide guidance, insight and support of the ABJHR. Dr. David Sheps is the Northern Clinical Champion, and Dr. Raj Sharma is the Southern Clinical Champion.

    An expression of interest was completed in January 2019 for the Governance Committee. The Governance Committee will oversee the development of key operating processes and policies for the ABJHR. Membership includes patients, researchers, physiotherapists, physicians (including family medicine and orthopaedic surgery), a chiropractor, a Bone and Joint Health Strategic Clinical Network representative, and one of the ABJHI Executive team. The ABJHR Governance Committee will be chaired by a patient, Mr. Murray Smith, from Calgary.
    An expression of interest was completed in January 2019 for the Shoulder Expert Group, who will initially determine scope of the shoulder module and the minimum dataset. Following module launch, the group will oversee annual reports on shoulder conditions and research conducted on shoulder conditions. The Shoulder Expert Group includes sports medicine physicians, physiotherapists, an athletic therapist, an orthopaedic surgeon, a radiologist, a massage therapist, and a patient representative. The group will be chaired by an Edmonton sport medicine physician, Dr. Terry DeFreitas.

Alberta Bone and Joint Health Registry Campaign

ABJHI is embarking upon a campaign to raise $2 million to establish the ABJHR.

Investments made today in developing the ABJHR are investments in bone and joint health for generations to come.

For you.
For all Albertans.

Click to Donate.