Alberta Bone & Joint Health Registry
The ABJHR will be developed in modules, starting with shoulder care. ABJHI plans to have the full, comprehensive ABJHR launched by spring 2025.
ABJHI’s Alberta Bone and Joint Health Registry will be:
Encompassing the public sector, private sector and voluntary participants
Long-term monitoring of entire musculoskeletal disease and health condition
Inter-connected modular data on the entire patient experience
Protected and anonymized in compliance with federal and provincial data privacy regulations
Anonymized data, findings and reports for researchers, industry, patients, clinicians, planners
- GOVERNANCE COMMITTEE
An expression of interest was completed in January 2019 for the Governance Committee. The Governance Committee will oversee the development of key operating processes and policies for the ABJHR. Membership includes patients, researchers, physiotherapists, physicians (including family medicine and orthopaedic surgery), a chiropractor, a Bone and Joint Health Strategic Clinical Network representative, and one of the ABJHI Executive team. The ABJHR Governance Committee will be chaired by a patient, Mr. Murray Smith, from Calgary.
- SHOULDER EXPERT GROUP
An expression of interest was completed in January 2019 for the Shoulder Expert Group, who will initially determine scope of the shoulder module and the minimum dataset. Following module launch, the group will oversee annual reports on shoulder conditions and research conducted on shoulder conditions. The Shoulder Expert Group includes sports medicine physicians, physiotherapists, an athletic therapist, an orthopaedic surgeon, a radiologist, a massage therapist, and a patient representative. The group will be chaired by an Edmonton sport medicine physician, Dr. Terry DeFreitas.
Alberta Bone and Joint Health Registry Campaign
ABJHI is embarking upon a campaign to raise $2 million to establish the ABJHR.
Investments made today in developing the ABJHR are investments in bone and joint health for generations to come.
For all Albertans.
Click to Donate.